Once again, our family was invited to go on “The Joy Truck 2” meeting with a new family whose child was diagnosed with a rare condition. In this episode, we shared about Chloe attending school and she is becoming “less princess”. Daddy also shared some of the tips with the new family and invited them to join Rare Disorders Society (Singapore).
Our story was featured in a Chinese documentary series called “Blissful Living” in 2015. It was not easy because it brought back some of the bad memories. However, it served as a reminder for us that no matter what happened, we need to look forward and be grateful of what we have.
We are not asking for more, just a complete family and everyone staying happy and healthy!