The Extraordinary Journey… Since 2016, daddy has been involved on Chloe’s school as a parent volunteer with their sharing programme. He was invited to reflect in his caregiver journey and we thought it will be nice to share with you here….
Death is not something we like to talk about yet it’s something we all have to go through… Are we prepare when facing death? Read about what we just went through with Chloe here….
In 2011, we spent around 4 months to publish an information paper on how patients diagnosed Pompe Disease receive reimbursement for their ERT. It was a very difficult journey to begin with knowing Singapore doesn’t have any funding to support us. As a middle in-come family and staying in a condominium with our parents, this…